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"Functional neurological disorders and the NHS attitude towards it."

About: Nottingham University Hospitals NHS Trust - Queen's Medical Centre Campus / General medicine

(as the patient),

I was recently in hospital because a new diagnosis of diabetes was causing fluctuating blood sugar levels and triggering my migraines and functional neurological disorder. Upon admission to ward B3, I was treated by doctors and nurses who I felt didn't understand any of my conditions. When I asked if the specialist teams I am under had been informed of my hospital admission, I was initially told I couldn't see my specialists. When I challenged this, because I know for a fact that as a patient I have a right to see my specialists. The nurse I spoke to denied knowing anything about the request. 

Whilst on ward B3 I had a migraine and I was denied vital medication to help get rid of it. In the end I had to call a family member and get them to bring the vital medication from home. However by this point 48 hours had passed and it was very doubtful that the medication would actually have any effect. As a consequence my pain level triggered a seizure. 

When this seizure happened I was subjected to verbal abuse from the doctors and nurses on duty. Because my seizures are functional in origin automatically I'm accused of faking being ill, attention seeking etc. Functional neurological disorders affect the autonomic nervous system which is very complex and not yet fully understood. It's widely accepted by neurologist that for some patients antiepileptic medication can be very effective at reducing their seizures. Suggesting that potentially an unknown biological process is happening. 

Thinking that functional neurological disorders are mental health conditions is outdated and offensive. I don't need to be seen by the mental health team. I'm not mentally unstable. 

Just because a patient has a condition that is not seen very often doesn't mean it's not a real or valid condition.

Doctors and nurses should not be allowed to stand in the wards and corridors and openly make fun of patients, mock them, call them liars and threaten to leave patients unattended in corridors as some sort of punishment.

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Responses

Response from Nottingham university hospitals 2 years ago
Submitted on 21/02/2023 at 16:02
Published on Care Opinion at 16:02


Thank you for taking the time to write and share this feedback. We are sorry to hear that this was your experience of your recent hospital stay – this is not how we would want any patient to feel. We have shared your feedback with the management of ward B3 for them to look into the concerns you have raised and identify where these can be learned from. We would also be happy to hear from you if you wanted to discuss your experience further or share any more information about your time in hospital that can help us to better identify where we might be able to make improvements. You can email us at QMCPET@nuh.nhs.uk.

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