"Communication failure"

I have tried to ring RMS number stated on your letter fails to ring out, I tried several times. My doctor refers me back to yourselves and won’t answer queries.

Phone consultation has been arranged again, I already spent time explaining it doesn’t work for me due to my autistic processing, I miss 80% of the conversation and am constantly playing catch up. It would be far better to bear the lighting (upsets my nervous system) and come in if I were allowed to voice record and had questions put to me in advance to allow thinking time.

I take at least 3 x as long as neurotypicals to think things through. It appears you don’t take what I say about my neuro-difference at all seriously but communication fails if in modes I cant use.

The haematologist I spoke to Friday (I don't have a name as it was a phone call and I could not take notes and listen) said I would have bloods taken asap as I’ve started chemotherapy( hydroxycarbamide) on Friday as advised but I have had no date or venue for the test.

When I called today the haematology secretary said an appointment had been made on 8/3 but gave no time or venue. As she predicted an appointment arrived by post but not for bloods, for a phone consult which is not what haematologist on duty had said. See above re phone consults. not ideal at all. i’m concerned re bloods as I will need time off work and to arrange staff cover for me which takes notice. If its imminent I need to know when/where.

I am also concerned re the side effects of the tablets. At present I have alternate pill days I cannot function on as I am too dizzy to do responsible work or to drive. I am exhausted, in bed by 6pm after a dose. The following day I am nauseous and weak, i missed 3 breakfasts so far when I usually eat and have my losartan and aspirin now I cannot. So aspirin is on an empty stomach. I cant think clearly, lose my balance and struggle to carry anything at work. less than ideal with a physical job.

I did say i was chemically sensitive and my dna analysis says detoxing is difficult. In 2020 I was close to suicide over the effects of amlodipine which caused me pain and the amitriptyline given to counter that blanked my brain so I couldn’t think, not going there again! Other suggestions welcome or ways to ameliorate the damage would help please. I was told someone would call back but nothing so far (end of working day, promise made in morning). i am hoping my mobile was tried as I work on a broad site and house phone is little use unless i am in the office(minority of time).