Text size

Theme

Language

"Accommodating autism patients"

About: General practices in Ayrshire & Arran

(as a service user),

I’ve written to my GP about high lights and flashing screens in waiting rooms meaning I am disabled by the effect of the light. I was hoping I could wait outside instead be called on my mobile when GP ready, instead I’m told home visits are their answer.

Morning

I called end May in response to their text re annual review due. I mentioned that surgery will not accommodate my sensitivity so house calls are suggested. I was told someone would get back to me with a plan

On the contrary a nurse appeared at my door yesterdays expecting to take bloods, talking about blood pressure. This was so out of the blue I was shocked and basically sent her away. I had given blood the day before up at north Ayr centre so didn’t want more needles also you could request some of it, duplication is pointless.

As an autistic I need processing time not sudden assault which is how it felt, that my safe space was compromised this is not acceptable behaviour. With notice it can be coped with. Please can you learn more about autism and train your staff in this and coordinate better with the rest of records and diagnostics don’t treat me as a training exercise or non thinking being it’s too distressing.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Programme Lead, Governance and Assurance, Primary & Urgent Care, NHS Ayrshire & Arran nearly 2 years ago
Submitted on 19/06/2023 at 10:57
Published on Care Opinion at 10:57


Dear Waternb58

Thank you so much for sharing your experience with us and I am so sorry that you feel your specific needs were not considered by your GP Practice.

We would very much like to share your comments with your GP Practice for them to consider any learning from your experience and if processes can be improved to help you feel better supported when contacting them in the future. To do this, please can you email the name of your GP Practice to HSCPAdmin@east-ayrshire.gov.uk. Your feedback will be shared anonymously however if you wished to provide your details within the email for us to pass to your practice so they are aware of your specific situation, we would be happy to do so.

Once again, I am sorry for any distress this experience has caused you.

Best wishes

Marie

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by waternb58 (a service user)

I received mail to say that my comments have been noted my comments and to acknowledge that I feel that stress/life plays a significant role in this, and to say that my options would be to try an alternative antihypertensive or give input re my mental health in another few months, and to let them know how I want to proceed.

Waiting a few more months is not good physicianship. Pushing me onto private therapy at a time of low income is not helpful. Basically it swallows my disability allowance. Perhaps people think that's what it's for? The surgery constantly seems to ignore mental health and psychiatry, just giving out pills instead.

It's not an effective substitution/solution. I had a brief set of sessions at Arrol Park where they seemed concerned with getting me out to be with other people but couldn’t risk assess the venues, left it to me with subsequent damage. I fancied the activities, not the adverse fallout.

It's no wonder we are seen as unsocial!

Opinions
Next Response j
Previous Response k