"I wouldn't have recovered near as well without their treatment and support"

About: Cameron Hospital / Recovery & rehabilitation Occupational Therapy / Occupational Therapy - Neurology Outpatient Scottish Ambulance Service / Emergency Ambulance Victoria Hospital (Kirkcaldy)

(as a service user),

In 2021 I had an MCA stroke. I was completely healthy to this point, in my 30s, with no elevated risk factors for any illness or disease.

This stroke - and in my view an associated severe ambulance delay (2.5 hours) - left me with dense left-side hemiplegia overnight. I spent 3 months in hospital in Fife. 2 weeks in Acute Care in ward 42 of the Fife Victoria Hospital and 2 and a half months in the Sir George Sharp rehab unit at the Cameron Hospital.

I started with zero independence and have been working hard to regain my independence.

In the hospital, I worked with a multi-discipline team - physiotherapy, OT, Psychology to start to understand my illness and attempt to regain my independence.

On leaving hospital I could transfer with support using a stick and AFO. My left arm was and is non-functional and my walking gait remains severely compromised.

Post hospital I have self-funded hundreds of hours of physiotherapy and other therapies. I have used the latest technologies for stroke and neurological rehab  at intensive rehab centres. I have also travelled abroad to attend intensive rehab led by world experts in their field.

On leaving hospital I was also referred to PRI Occupation stroke/neuro OT Outpatients where I met my occupational therapists, Lucy and Lois. I think my extensive experience of private centres worldwide qualifies me to opine that both Lois and Lucy provide world-class care in terms of stroke and neurological rehab. I wouldn't have recovered near as well without their treatment and support. I also continue to make progress as a result of their treatment.

Some of the areas that Lois has helped me with include:

Driving - Lois took me through the necessary cognitive assessments to help me back to driving. The importance of driving for my overall life quality and independence cannot be understated.

Fatigue management - tiredness after a stroke is debilitating. I've worked with Lois to monitor and implement tools, lifestyle changes and strategies to reduce and manage fatigue

Brain fog - post stroke my brain has felt like it was operating at 60% its normal capacity. I've worked with Lois to implement strategies to improve brain function and now would estimate I have recovered to circa 85% of my previous cognitive processing ability.

Return to work - Lois has worked diligently to support me with a return to work. Preparing reports, support and assessments, which I am pleased to say has now resulted in me returning to work

Upper limb rehabilitation - I continue to work on rehabilitating my left upper limb and with Lois's expert support we are shifting the arm from completely non functional towards a functional arm. recently I've been able to use it for swimming.

I am extremely grateful towards my therapists in the Stroke/Neuro OT outpatients, they have made major improvements towards my independence and drastically improved my quality of life.

My only complaint would be that with a world-class service, capacity should be increased so that more intensive therapy can be provided.

Additionally with such wonderful therapist and the quality of technological rehab solutions, additional funding for technological rehab tools would be beneficial.

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Responses

Response from Elaine Murray, Therapies Service Manager, Acute Services Division, NHS Fife 11 months ago
Elaine Murray
Therapies Service Manager, Acute Services Division,
NHS Fife

Service Manager for the following services at the Victoria Hospital (Acute) Physiotherapy, Occupational Therapy and Orthotics

Submitted on 03/01/2024 at 15:43
Published on Care Opinion at 16:20


picture of Elaine Murray

Dear Daniel528,

As the Therapies Service Manager at the Victoria Hospital I would like to thank you for taking the time to give some feedback and to share your story. Although you were on Ward 42 for a short period of time I am pleased to hear that the therapists started your rehabilitation early and that a range of services have contributed to your continued recovery back to independence.

I will share your feedback with the Team on ward 42

Best wishes

Elaine Murray

Therapies Service Manager

Acute Services, VHK

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Response from Lesley Kay, Patient Experience Team Leader, Corporate Affairs, Scottish Ambulance Service 10 months ago
Lesley Kay
Patient Experience Team Leader, Corporate Affairs,
Scottish Ambulance Service
Submitted on 04/01/2024 at 13:17
Published on Care Opinion at 13:17


Dear Daniel528

Thank you for posting your Feedback here on CareOpinion.

I am sorry to hear all you have been through, I can't begin to understand how difficult this experience has been for you.

I am really sorry to hear there was a delay in reaching you when you called for assistance from us. If you would like us to look into this matter for you, please may I kindly ask you contact our team at sas.feedback@nhs.scot with your name, address and date of call out and I will certainly arrange this for you.

I am delighted to read about the care given to you and the follow up care since, it really does sound exemplary indeed.

I wish you all the best on your continued recovery

Kindest Regards

Lesley

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Response from Terrianne Thomson, Perth and Kinross Health & Social Care Partnership 10 months ago
Terrianne Thomson
Perth and Kinross Health & Social Care Partnership
Submitted on 09/01/2024 at 17:16
Published on Care Opinion on 10/01/2024 at 09:28


picture of Terrianne Thomson

Thank you so much for taking the time for such detailed feedback about the care and treatment you have received. You sharing your experience provides the team with such rich and meaningful information that gives the staff and team a sense of achievement and recognition. It also allows us to promote our service and hopefully provide others with the same experience and inform others of what is out there and what can be achieved beyond expectations.

I will endeavour to share your kind words with the team and beyond.

We share your own thought as to how we can extend this capacity to provide more widespread expertise in a timely way.

Thanks again and wish you well with your ongoing recovery.

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