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"Fibro flare ups and feeling supported"

About: Adult Psychological Therapies Service / Condition Management Programme

(as the patient),

I was on the sofa most of the day, not really eating , I couldn't be bothered to get showered most days because of the pain and I suppose a bit of depression . I was feeling very low. Up until now I also have sciatica . I wasn't going out and was sleeping most of the time because at night my sleep was disturbed because of the pain and restless legs . I was and still am on long term sick , this condition has taken my work life and social life . I was always very active . 

I have worked for 50 years and I am retiring this August . I have always been a positive, outing ,life and soul of the party type person I never said no or stayed in the house . I have also been practising self development for over 30 years  but with all this I have never felt so negative. You can imagine how I was feeling with all this, totally frustrated.

Then a phone call from Lucia from CMPT changed all that .  She is a lovely lady she listened to my story and its because of her and this program that I am off the sofa and eating better healthier , my space at home is neat and tidy . She made me see how I can manage this condition and it doesn't have to be this way . Lucia also reminded me of mind body connection,  stuff I already knew but had completely forgotten about . Lucia got me back to my self development She reminded me of how strong I am and how I can have a life with this condition if I manage it correctly . Don't get me wrong I'm not going mountain walking any more I know my limits but I am getting out and if I need to stop and rest I do and that's OK  . Because of Lucia and this program I can see a future a life  all be it a different one than before but that's OK.  Lucia made me see that .

Thank you so much Lucia you will never know how much you have done for me I really can't thank you enough .

Love and light .

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Responses

Response from Barbara Anne Richardson, Condition Management Programme Coordinator, Mental Health and Disability Directorate, Southern Health and Social Care Trust 11 months ago
Barbara Anne Richardson
Condition Management Programme Coordinator, Mental Health and Disability Directorate,
Southern Health and Social Care Trust
Submitted on 08/05/2024 at 17:33
Published on Care Opinion at 17:33


Thank you for taking the time to share your very personal experience of Fibromyalgia and your engagement with the Condition Management Programme (CMP). I am delighted that you found it so supportive and beneficial. Lucia is a physiotherapist who we have been lucky enough to have working within CMP for a long number of years and she is a vital part of our wider CMP team. I will ensure that your kind words are shared with her.

Kind regards

Barbara-Anne

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by cyclonefk95 (the patient)

Thank you Barbara Anne, much appreciated.

Regards

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