"Referral was not made for 6 months, despite being told otherwise"

About: Queen Elizabeth University Hospital Glasgow / Gastroenterology (Stomach and gut problems) Wards 8b, 8c &8d

(as the patient),

4 years of gastro problems and being passed pillar to post, no one knows what’s going on.

Finally spoke to a Gastro surgeon in January whom advised they'd speak with the Gastro specialists to get me on medication to stop these episodes, and come up with a plan to keep my symptoms at bay. The surgeon said they needed to refer me first to get an appointment. All fine. 

5 months later, my symptoms are worsening, lasting longer, and all round I am deteriorating. I phone the surgeon's secretary over the course of a few weeks, without a single call being returned. One day I phone and manage to get through, they advise I should be contacting the Gastro Specialists instead, and provided me with a number. All fine. 

I call the Gastro specialist's secretary, whom advised the referral was only passed over to their team on that day, 5 months after I was told the referral was made. So I have been suffering for 5 months whilst my referral sat on somebody’s desk waiting to get passed on. 

Not to mention that I am type 1 diabetic, and suffer with depression and anxiety, all of which have been extremely effected by the gastro problems. This has driven me to try to end my life on multiple occasions due to the way the symptoms leave me. 

I feel disheartened, exhausted and simply apprehensive of the NHS ability to refer me correctly despite the severity of the situation. Having worked for the NHS previously, I am so disappointed something this serious has been missed, and my suffering has been prolonged because of someone’s inability to do their job. 

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Responses

Response from Nicole McInally, Patient Experience and Public Involvement Project Manager, PEPI, NHS Greater Glasgow and Clyde 3 months ago
Nicole McInally
Patient Experience and Public Involvement Project Manager, PEPI,
NHS Greater Glasgow and Clyde
Submitted on 03/06/2024 at 15:42
Published on Care Opinion at 15:42


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Dear JJohn157

Thank you for getting in touch via Care Opinion. I am sorry to hear that you have been passed from pillar to post and for the additional suffering and distress this has caused. You have mentioned how this is impacting on your mental health, if you need urgent help you can call NHS 24 Mental Health Services on 111. If you just need to talk with someone, then the following organisations can help: Samaritans - 116 123 (freephone) www.samaritans.org or Breathing Space - 0800 83 85 87 (freephone). www.breathingspace.scot

As Care Opinion is anonymous, can you please contact my colleague, Mhairi McGuigan, (Business Manager) with your personal details including your date of birth? Can you please telephone Mhairi on 0141 201 6350.

We can then provide you with a more detailed response.

Thank you

Nicole

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Update posted by Jjohn157 (the patient)

The number provided just rings out when I tried to call, can you provide me with an email instead?

Response from Nicole McInally, Patient Experience and Public Involvement Project Manager, PEPI, NHS Greater Glasgow and Clyde 3 months ago
Nicole McInally
Patient Experience and Public Involvement Project Manager, PEPI,
NHS Greater Glasgow and Clyde
Submitted on 04/06/2024 at 11:23
Published on Care Opinion at 11:23


picture of Nicole McInally

Morning

Can you please email Mhairi @ Mhairi.mcguigan@ggc.scot.nhs.uk

Thank you

Nicole

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