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"Gave me the information, tools and advice to help myself"

About: Royal Cornwall Hospital (Treliske) / Chronic Fatigue/ME

(as the patient),

After being diagnosed with CFE/ME 5 years ago I had been managing the condition ok - until 2 years ago.

I was referred again - this time to Sarah, Clinical Nurse Specialist at

Cornwall and Isles of Scilly ME/CFS Service for the Royal Cornwall Hospitals NHS Trust. For the last year, she has been an incredible support. I have used a lot of the NHS services and received a lot of fantastic care over the years. On this occasion Sarah differed from previous help. She was clear, supportive, non-judgemental, had the time and the 'sunshine' I needed. She didn't 'help me'. She gave me the information, tools and advice so that I could help myself. She supported my life changes and guided me in the right direction. She also introduced me to a lot of scientific research for my condition that was new to me and helped validate my situation.

I can only hope that this service is available to others elsewhere. Thank you.

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Responses

Response from Jess Saunders, Outpatient Transformation Support Officer, Outpatient Transformation Team, Royal Cornwall Hospitals NHS Trust 9 months ago
Jess Saunders
Outpatient Transformation Support Officer, Outpatient Transformation Team,
Royal Cornwall Hospitals NHS Trust
Submitted on 23/07/2024 at 10:20
Published on Care Opinion at 10:20


picture of Jess Saunders

Dear Louweezie,

Thank you for taking the time to share your story with us, please accept my apologies for the delay in responding to your feedback. It is great to read about your experience with Sarah supporting you, this standard of care is what we strive for across Royal Cornwall Hospitals NHS Trust. I can clearly see how her support has inspired you to help yourself with the tools, information and the suggested research she provided.

I am responding to you as a member of the Patient Engagement team here at RCHT, but I will ensure that Sarah gets a special 'thank you' through our Learning From Excellence scheme so she gets to see your feedback.

Thank you again for taking the time to share your experience with us.

Best wishes,

Jess

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