"Dementia Companions"

About: Older people's healthcare / Ward 42 Western Health & Social Care Trust / Dementia companion service

(as a relative),

My mother was recently a patient on ward 42. Although she has a diagnosis of Alzheimers, she understands what is being said to her although to respond to questions she requires time and patience. 

When an inpatient she was reluctant to eat and she did not like the food options she was given. I was not initially asked about her food choices. 

However when the dementia companions Sheila and Josephine were on the ward things changed for the better. They asked me to fill out a form with all mum's likes and dislikes, how she liked to be approached, who her relatives were and what she was interested in. Then the staff could communicate properly with mum if they read this document.  The information on this form provided everything staff required to provide personalised, individualised care as should be. 

For a patient with dementia who has difficulty expressing their needs how could the care be unique to mum if no one ever asked family for this information? 

Regarding the food choices Sheila and Josephine took time to monitor mum at meal times to see which foods she did actually like so they could re order. They also got food from the fridge which I had provided and gave it to mum when she refused to eat the food provided by the hospital. Mum required prompting at meal times, she did not require staff to feed her.

 Josephine and Sheila were able to take the time to prompt mum which meant she was once again independent with eating and drinking. 

Before the dementia companions came to the ward, staff were feeding mum. When I asked why, one staff member stated this was quicker as they didn't have time to prompt. Unfortunately other staff then copy and make an assumption she required feeding. 

In my opinion the input from dementia companions is essential when a person with a diagnosis of dementia is an inpatient in hospital. I can only speak from my experience of these two particular dementia companions and they were excellent.  Excellent at communicating with mum, excellent at identifying mum's needs as they changed. They were extremely caring and compassionate. I am truly grateful for their input. Because of these ladies mum was able to maintain a level of independence which would otherwise have been lost. 

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Responses

Response from Nicola Hayes, Dementia Service Improvement Lead - Acute & Non Acute, PCOP, WHSCT 2 months ago
Nicola Hayes
Dementia Service Improvement Lead - Acute & Non Acute, PCOP,
WHSCT
Submitted on 02/08/2024 at 09:04
Published on Care Opinion at 09:04


picture of Nicola Hayes

Dear pelicandn98

My name is Nicola Hayes and my substantive post is Dementia Service Improvement Lead for Acute Hospitals and I manage the Dementia Companion Team.

Thank you for your feedback story ‘Dementia Companions’ and thank you for taking the time to post this story at a time when your mother was not at her best health.

Coming into hospital can be a fearful and stressful time for any of us, never mind for someone living with dementia and in your mother’s case, it is great to hear the positive impact that the Dementia Companions had with the care provided.

The care and treatment provided is essential to ensure that any hospital journey is person centred, particularly when your mother’s health at that time was not at her optimum..

Person centred care is paramount within dementia care and this has been evidenced throughout your experience and your story, when you highlight time, patience, approach, communication, likes and dislikes, choice and independence, interests and most importantly who is important to your mother. All of these encompasses what each of the Dementia Companions strive to deliver. I am delighted that you had the experience of the Dementia Companion Team and the important role that they can provide to people living with dementia who are admitted to hospital.

I will share this post with Sheila and Josephine specifically and with their fellow Dementia Companions, which they will be delighted to receive.

May I thank you again for taking the time to share your experience with us on Care Opinion.

Your feedback is very welcome to ensure safe, effective, compassionate and well led care is delivered and this will be used to enhance the care delivered to others like your mother, living with dementia.

Best Wishes

Nicola

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