Care Opinion

No medical input or conversation

Posted By Maisie19

"No medical input or conversation"

About: Royal Infirmary of Edinburgh at Little France / Sleep Medicine

(as a service user),

Hi,

My frustration has now turned to feeling angry with the situation.

Synopsis- 

Referred by GP to RIE Sleep Medicine 2013

Home sleep study autumn 2023

Diagnosis by mail early 2024 (As 1st appt cancelled by RIE) 

2nd Appointment for summer 2024 cancelled by RIE 

3rd Appointment for early autumn 2024 cancelled by RIE 

By Mail I was given a diagnosis of ‘severe’ sleep apnoea. No CPAP machines due to waiting list! Bought my own equipment at huge cost. Joined a support group. 

This is unacceptable that I will have been on CPAP over 8 months with 3 appointments cancelled by the hospital and no medical input or conversation. I have questions I’d like to specifically ask a sleep medicine consultant. 

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Responses

Response from Karen Hendry, Clinical Nurse Manager, Cardiothoracic Surgery | Cardiology | Respiratory | Sleep Medicine | Home Ventilation, Royal Infirmary of Edinburgh at Little France 4 months ago
Karen Hendry
Clinical Nurse Manager, Cardiothoracic Surgery | Cardiology | Respiratory | Sleep Medicine | Home Ventilation,
Royal Infirmary of Edinburgh at Little France

Clinical Nurse Manager

Submitted on 21/08/2024 at 17:12
Published on Care Opinion on 22/08/2024 at 07:56

Dear Maisie,

I am sorry for your frustration with this situation.

If you would like to contact Sleep Medicine Department at the RIE on 0131 242 3872 or the Patient Experience team on 0131 536 3370. We will be able to Investigate this further.

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