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"Continuity of care with known faces"

About: Western General Hospital / Oncology

(as the patient),

I have a brain tumour. I have been attending for high dose radiotherapy. the service I have received has been fabulous from the very beginning. I also have a cardiac disorder, blood clotting disorder and lupus with severe uv and internal light photosensitivity. Surgery is not possible due to being too high risk.

We travel about 1 to 1.5 hours , parking is always a concern at busy hospitals but the western has a system in place for the cancer centre and the staff were so good every time making sure we were easily parked,  

Booking in was quick and efficient, the staff used their time very efficiently and if there was any gaps available they made sure a patient was taken early. They made sure the lights were dimmed in the treatment room for me to be able to remove protective garments without my skin burning, I took in personal music to help relax during treatment , staff introduced themselves and there was continuity of care with known faces. There was no feeling of urgency to get up and off the table and help was always available . 

The waiting area was quiet, originally there has been a cafe type unit there which has closed, however, the patients coming in daily are so tired and feeling unwell that the quiet atmosphere without the bustle is actually nice.

There were small groups of patients meeting up daily , assuming similar treatments and men in particular providing support and recognition for each other at their *usual spot*. A particularly important aspect of men's mental health.

Midway through treatment planned access to consultant review, future planning & current well being.

Within an emergency evacuation, staff were professional & reassuring.

A slight improvement could be, perhaps the provision of extra toilets as the treatments have certain side effects resulting in patients needing immediate access.  

I would like to take this opportunity to thank all staff members involved for their care & attention during my treatment at the Western General Hospital.

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Responses

Response from Morag Moore, Clinical Nurse Manager, Clinical Oncology, NHS Lothian 5 months ago
Morag Moore
Clinical Nurse Manager, Clinical Oncology,
NHS Lothian
Submitted on 22/10/2024 at 12:26
Published on Care Opinion at 12:26


Dear Logwoman,

Thank you so much for taking the time to send us your feedback. I will ensure your comments are passed on and thank you for your suggestions about the toilet facilities.

The treatment you have been going through will have been really tough, but hopefully the 'known faces' and other support you had has helped make this a bit easier for you.

I wish you all the very best, and thanks again.

Morag ( Moore, Clinical Nurse Manager/ ECC/WGH)

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Response from Alexander Crawford, Business Manager, Estates and Facilities, NHS Lothian 5 months ago
Alexander Crawford
Business Manager, Estates and Facilities,
NHS Lothian
Submitted on 23/10/2024 at 11:17
Published on Care Opinion at 11:57


Dear Logwoman,

Thank you for sharing such positive and detailed feedback. We can appreciate how hard this journey has been for you and we are grateful that you took the time to share your story with us.

It is lovely to hear about your positive experience of care at the Western General Hospital, and how the support you have been receiving from staff has had a positive impact on your journey.

Regarding your comments about parking, we understand that hospital parking plays an important role in the patient’s experience. Our team strive to ensure that patients have a positive experience whilst attending hospital and it is fantastic to hear that the system we have in place at the Western General Hospital is working well for patients and that staff are always very helpful.

Please be assured that your lovely comments will be passed on to the Traffic Management Team, who will be delighted to receive it.

Very best of wishes,

Alex Crawford (Business Manager - Estates & Facilities, NHS Lothian)

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