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"Annual Breast Cancer Review"

About: Western General Hospital / Edinburgh Breast Unit (Ward 6)

(as a service user),

I have had cancer (Breast Cancer) for several years and have been cared for by several services including Medical Oncology, Clinical Oncology, Breast Surgeons, General Practice and Maggie's. My care has been good in many aspects, but the appointments with the Breast Surgery team have been poor and have got increasingly poor over the years. After my most recent appointment I will not be going back, despite the fact that I have several yearly reviews still due to occur.

The BC Nurses and the ANP staff, alongside the Radiology staff in Mammography, have been great. But the surgeons have been dismissive and lacking in compassion. Their communication skills have been poor, for example: using euphemisms for cancer, demonstrating no empathy for my initial diagnosis and subsequent complications, being derogatory about other professionals, and giving incorrect information about my results.

I feel the service has deteriorated: investigations that were previously recommended (by the department itself) for me on a yearly basis have been withdrawn, and same day results (mammogram) and same day follow up (ultrasound for areas of concern) are no longer offered. When asking for more information about this, it was implied that I was being unnecessarily anxious, and there was no acknowledgement that the goalposts had been changed and I was told to just go home.

I understand that due to funding issues that services may have worsened, but this should be explained with honesty and compassion, not with gaslighting by pretending there has been no change at all, particularly when it is clear from notes that what I was saying could be verified.

My impression is that with the employment of the specialist nursing staff (BCNs and ANPs), the medical staff no longer see communication skills, empathy or patient centred care as their role.

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Responses

Response from Emma Childs, Clinical Breast Nurse Practitioner, Breast Unit, Western General Hospital 5 months ago
Emma Childs
Clinical Breast Nurse Practitioner, Breast Unit,
Western General Hospital
Submitted on 08/11/2024 at 14:28
Published on Care Opinion at 14:29


Dear Carry,

I would like to apologies for the difficult experiences that you have been having within the Breast Unit. It was never out intention for you to have this experience and we take this feedback seriously.

Developments and changes to Breast Services are always evidenced based and that includes the Follow Up Protocols. This evidence in recent years has enabled us to make treatments and follow up care more targeted to the individual to improve patient outcomes. I can assure you that I will feedback your experience to all the teams involved and if you would like to get in touch directly to discuss this further then please do.

Emma Childs

Interim Nurse Consultant.

Breast Services

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Response from Mariska Vernon-Stroud, Patient Experience Team Lead, Patient Experience Team, NHS Lothian 5 months ago
Mariska Vernon-Stroud
Patient Experience Team Lead, Patient Experience Team,
NHS Lothian

I gather feedback from patients to recognise good practise and supporting improving services in NHS Lothian.

Submitted on 08/11/2024 at 15:58
Published on Care Opinion at 15:58


Dear Carry McM,

If you wish to get in touch with Emma Childs and don't have her contact details, please contact the Patient Experience Team on 0131 536 3370 (Monday to Friday, 9-2pm) or by email on LOTH.feedback@nhs.scot and leave you details and we'll ensure these are passed on to Emma to allow her to contact you.

Thank you for sharing your story,

Kind regards,

Mariska

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