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"Access to clinic"

About: The Ulster Hospital / Pain Clinic

(as a parent/guardian),

My daughter was under the care of a consultant who has since retired. She was transferred to a new consultant who would not see her because they're the wrong specialism.

She has covid-induced ME, fibromyalgia, dysautonomia, orthostatic intolerance, iron deficiency and breathing pattern disorder.

And she is receiving no care from the SEHSCT.

We complained and were told you have an appointment with the pain clinic, who diagnosed fibromyalgia and discharged her.

In my view, that is not ongoing medical, that is abandonment. And it is not what I pay my taxes for.

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Responses

Response from Pain Services Manager, Surgery - Anaesthetics, Theatres & ICU, South Eastern Health & Social Care Trust 2 months ago
Submitted on 14/02/2025 at 13:26
Published on Care Opinion at 16:23


In the first instance I would like to apologise that you feel that your daughter's care has not been of a satisfactory standard. In order for us to investigate this appropriately and ensuring patient confidentiality please can you contact the complaints department at the South Eastern HSCT and we will look into this for you. The details are as follows:

To contact the Complaints Office you can:

1. Write or email

2. Telephone

3. Call in person

Complaints Department

South Eastern HSC Trust

Lough House Ards Hospital Church Street

Newtownards BT23 4AS

Telephone: (028) 9056 1427

Email: complaints@setrust.hscni.net

Update posted by Jan462 (a parent/guardian)

We have already complained via our MLA. I'm afraid I do not have the energy to pursue it further. I have been fighting for her for four years and I am worn out.

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