My husband found out recently that he has Parkinson's Disease - after it had been ruled out following his MRI and CT Scan.
A doctor at our GP practice told us they would ask for an urgent appointment to Neurology to try and find out the reason for his continuing symptoms. At my husband's appointment with a Consultant Neurologist at University Hospital Ayr, he was told he had Parkinson's. This was totally out of the blue and a horrific way to find out such life changing news as he was on his own. He was not advised to take anyone with him. We’re in shock and angry that, after being told he didn’t have Parkinson’s, to find out that he actually does have it.
My husband came home with a letter to give his GP asking for a prescription for medication. He couldn’t tell me if he was told how it could help. That’s all he was told I think. I wasn’t there to hear what exactly was said but my husband says he was asked to follow a healthy diet and he had to ask what his prognosis was. He wasn’t given information on what to expect moving forward like symptoms worsening, how to improve these or information on support groups which we now both very much need.
When I explained this to the receptionist at our practice, she said he’d have to make an appointment with one of their GPs to discuss that. It felt like they were treating him as if he had been diagnosed with flu instead of a potentially life threatening, serious condition.
"A horrific way to find out such life-changing news"
About: General practices in Ayrshire & Arran General practices in Ayrshire & Arran University Hospital Ayr / Neurology University Hospital Ayr Neurology KA6 6DX
Posted by cartvale (as ),
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