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"Liver Transplant Journey 2024-25"

About: General practices in Fife Outpatients Department / GI, Liver & Renal, Vascular General Surgery Queen Margaret Hospital / Endoscopy Queen Margaret Hospital / Gastroenterology Royal Infirmary of Edinburgh at Little France / GI and Liver Inpatients Victoria Hospital / Gastroenterology

(as the patient),

I have had serious health issues for number of years, which led to progressive liver disease. Unfortunately last year it got so bad that I was facing stage 4 cirrhosis. I have been under GI clinic in Fife+ Victoria Hospital for number of years with my GI consultant Dr. Gilchrist. Since June 2024 things with my condition started to progress very fast and very bad, to the point that I was dying.

The NHS GI department, staff, consultants were on the ball and did everything and beyond to save me as well as to try ease my suffering physically and mentally by attending and meeting my needs. They always kept me and my family updated, communicating , informing and practically taking care of me.

Last January I was lucky enough to receive and undergo liver transplant which saved my life. Now I'm under post-transplant care clinic, which I'm attending on weekly basis. The care I've been receiving has been outstanding, it beings tears of joy to my eyes.

I would like to especially mention: Liver Transplant Unit Ward 206 at Edinburgh Little France Hospital. Personnel such as Lara, Stevie, Maria  surgeons and assessment team, physio, dietitians ,and the rest of folks. Also the Ward 44 at Victoria Hospital Kirkcaldy with Dr.Gilchrist, Dr.Pollock for great care especially before my transplant.

Although my GP hasn't been helpful and in moments very awkward and incompetent to deal with during my journey of suffering, the GI department really help and save my life, for which I'm grateful.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Louise Davies, Patient Experience Officer, Patient Experience Team, NHS Lothian last month
Louise Davies
Patient Experience Officer, Patient Experience Team,
NHS Lothian
Submitted on 10/03/2025 at 17:23
Published on Care Opinion at 17:23


picture of Louise Davies

Dear orangemj84

I am really sorry that you have been so unwell, but I am so pleased to hear of the outstanding care you have received.

I would like to thank you on behalf of the team at the Royal Infirmary of Edinburgh, who I have shared your lovely feedback with.

Best wishes

Louise

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Response from Pauline Hope, Clinical Nurse Manager, Planned Care Directorate, NHS Fife last month
Pauline Hope
Clinical Nurse Manager, Planned Care Directorate,
NHS Fife
Submitted on 11/03/2025 at 07:41
Published on Care Opinion at 07:41


Morning,

My name is Pauline Hope and I am the Clinical Nurse Manager for the GI Nurses in NHS Fife. Thank you for taking the time to share your story on care opinion. I am sorry to read that you have had serious health issues for a number of years and your condition started to progress very fast. It is lovely to hear that you have had a Liver Transplant and your care received has been outstanding.

I shall share your story with the GI Nurses and Dr Sian Gilchrist, they will be delighted to hear how well you are doing.

I wish you well in your recovery.

Kind regards

Pauline

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