"I am suffering everyday"

I had an appointment with a consultant haemotalogist in January 2024, they advised me i was going to get an urgent referral to the queen elizabeth hospital in Glasgow as my hydrocephalus was getting worse.

I waited for nearly a year to be seen by the neurology consultant.

I seen the consultant neurologist in December 2024, meaning I waited 11 months for this appointment even though i was informed by my haematologist my hydrocephalus was worsening.

I eventually got my MRI in March 2025.

This is now April 2025 and i am still waiting on results for this even though the MRI was requested urgently due to my condition worsening. I feel i am getting forgotten about and dismissed.

I received a letter to say I have an appointment to see the neurosurgeon in September 2025.

I am suffering everyday, taking alot of medication for the pain and also for the sickness. I work within the NHS and understand that the wait is long, however I struggle everyday going to work and looking after my children due to the severe side affects my hydrocephalus causes me.

It is a constant battle with severe pain and sickness on a daily basis.

I feel very helpless and have moments where I think I could end my life as I can't suffer the pain much longer. I have been admitted twice to Wishaw General with my  symptoms and have been sent home as the queen Elizabeth is dealing with my case.

I am very disheartened with the care i have been provided with.