"Endometriosis laparoscopy surgery"

After years of pushing for a second laparoscopy, I was finally given a surgery date and felt hopeful that I might finally get some answers. For context, I had been extremely unwell—unable to walk long distances or work due to the severity of my symptoms.

When I woke up from the procedure, I was in pain, which led me to believe something had been addressed during surgery. Later, when the gynaecologist dr came to speak with me, they explained what was found. I was showed some pictures that were taken and I now have them in my possession, you can clearly see spots of endometriosis. There was also a piece of tissue sent to the lab which the consultant advised they didn’t think was endometriosis (it was confirmed endometriosis by the lab). But then came a comment that completely floored me: that the medication I was supposed to go on—there was no point, as my endometriosis wasn’t that bad.

There were no witnesses in the room, but I know what was said, and so do they. I was devastated. As someone who had been living with intense symptoms, to have them dismissed like that was incredibly disheartening—especially considering that the severity of endometriosis symptoms doesn’t always match what’s visible during surgery.  

Two months later, I paid privately for a second opinion. There, I was diagnosed with stage 4 endometriosis, including a 9x13cm nodule on my rectum.

Note to Care Opinion staff: I’m aware there was a formal complaint submitted about my case, so they'll likely know who I am—and I’m okay with that. I’m sharing my story so others can be aware that misdiagnosis is possible. Don’t be afraid to advocate for yourself.