Care Opinion

Text size

Theme

Language

Videos in BSL or ISL
Help with language translation
Help with reading or listening

Collecting of equality data by patient opinion

Posted By it'salwaystherighttimetodotherightthing

"Collecting of equality data by patient opinion"

About: Patient Opinion

(as a relative),

I have noticed that you collect some equality monitoring data when people submit their stories. What is not clear however, is what you do with this information?

It is also not clear why the categories used by patient opinion are not in line with those used by public authorities? For example you only use very broad categories to describe ethnicity. I do think people should know what this information is used for and how it is used. Thanks

More about:
Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from James Munro, Director of Research & Development, Care Opinion 10 years ago
We are preparing to make a change
James Munro
Director of Research & Development,
Care Opinion

I lead Care Opinion platform development, and also work on research, education and health care policy

Submitted on 27/02/2015 at 14:44
Published on Care Opinion at 14:45

picture of James Munro

Hello there

Thanks for raising these important questions about the additional personal data which Patient Opinion collects.

We very recently added the ability for people using Patient Opinion to add some additional data about themselves: age, gender, ethnicity and disability. We make clear that adding this information is entirely optional.

The main reason for adding the ability to record this information was to enable us to offer the NHS Friends and Family test question, in line with guidance set out by NHS England. The ethnicity categories we have used are those recommended by NHS England.

Although we have a privacy notice on the data collection page which states that “We will share information about the overall mix of people using Patient Opinion in our reports”, I agree we can do better in making explicit how and where this personal data will be used. We’ll add a page to the site about this, and link to it from the data collection page.

I hope that’s helpful.

With best wishes

James

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Response from James Munro, Director of Research & Development, Care Opinion 10 years ago
We have made a change
James Munro
Director of Research & Development,
Care Opinion

I lead Care Opinion platform development, and also work on research, education and health care policy

Submitted on 01/03/2015 at 22:57
Published on Care Opinion at 22:58

picture of James Munro

We've now added a page on the site to provide more explanation, and linked to it from the relevant pages. You'll find it here:

https://www.patientopinion.org.uk/info/personal-data

Thanks for keeping us on our toes!

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Opinions
Next Response j
Previous Response k