The first thing I'd say is that you must remember this is a hospital and whilst patients (your child) may appear to be well, they are here because they aren't. Our daughter went to Huntercombe and we were very lucky in that she committed to following the programme and we could physically see her health improving. Don't expect this to be easy, from the moment we left her and then every visit afterwards, it is heart breaking to leave them behind. However, we also know that had we not she may have become so sick anything could have happened.
Sometimes your daughter may disagree with the calls that are made, sometimes they will be frustrated and sometimes you will be frustrated. All I would say is, stick with it, its worth it and the staff are caring, understanding and the medical team really know what they are doing. The disease is such that it appears they don't trust anyone, its the disease they don't trust and rightly so.
Follow the programme, it will make you better. Our Daughter did and was discharged in less than 3 months with longer home leaves along the way.
The follow ups after CTS are very consistent, doctors are very responsive and the CPA was very constructive.
Remember, this is a hospital and it will make your daughter better if you support her and them to do this.
Thank you Kennet and Huntercombe team for giving out beautiful daughter back to us.
"Kennet Ward"
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