I have been waiting nearly 3 years for an operation for chlorestoma, which was to take place mid September 2021. So I have been isolating and doing tests to be called today, less than 24 hours to go too. Suddenly, the hospital is too busy and elective surgery has been cancelled with no further information or dates given.
To say I am gutted and disappointed is an understatement. 3 years of ear infections, discharges and fighting to get seen by a consultant to get a diagnosis. We were then hit with covid and operations cancelled then back up, and running to come this close, and its cancelled. I have had to take time off work, sort out child care for when in hospital and afterwards. To just cancel and return to normal until they decide to call last minute and expect us to drop everything last minute and abide by the rules to get an operation date. If I hadn't called about this date and operation, I might have missed it, as letters are not being sent out in plenty time to organise. I can't just drop work and kids at the click of a finger. I need to plan and organise.
So in the mean time what am I supposed to do. Return to work and my ear continues to smell and discharge. When they call with a new date, what if I can't arrange everything in time - I'll need to cancel again.
3 years of this hassle I have gone through. I have to struggle at home with not hearing and struggling at work as well. How long do I have to wait? Will I need to fight my case for another 3 years to get an operation?
"Operation cancelled with less than 24 hours notice"
About: Ninewells Hospital / Ear, Nose & Throat Ninewells Hospital Ear, Nose & Throat DD1 9SY
Posted by Wind22 (as ),
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Update posted by Wind22 (the patient) 3 years ago