"My son's transition to adult services"

My son is 18 and leaving school at the end of term heading to college in August.

While the support from the social work team has been fantastic and very well coordinated the health side of things has been fairly inconsistent.

Some services want to discharge as soon as the child hits 16 and others keep the child till 18 which makes communication between the various services at best lacking and at times non existent.

Lots of time spent phoning round to sort out things like continence products.

E.g. continence service and health centre staff etc refer back to community children's nurses who have already discharged son and CCN give the number for the Continence Service who won't deal with parents directly but can't say who they will take direction from.

College link sessions having to be cut short due to staff not being trained which would have been an easy fix but son is still on the children's contracted feeding pump and not the adult one yet.

It would be better if all services switched at the same time, 16 or 18, rather than dragging it out, also a lead person to help coordinate all the various disciplines for the family would have been good.

We are currently still under some children's services, some adult services and in limbo/waiting on referrals/appointments for others