Text size

Theme

Language

"Disappointed with outcome of psychiatric assessment"

About: Tees, Esk And Wear Valleys NHS Foundation Trust

(as a service user),

I'm incredibly frustrated, agitated, angry and fed up with the state of NHS Mental Health Services in this country, but more so my local CMHT. I could go on and on about loads of isolated cases where I've been assessed for all sorts. But I'm just not happy or satisfied with the care [or lack of care rather] I am receiving. 

I've had crippling paranoia and anxiety for years, I'm also depressed; over somethinq quite personal, this means I can't be outside my house, leave my house, unless for med appts, and I take a taxi most places.

I believe these thoughts with such severity it has impacted my life tremendously, both professionally and personally. I have started becoming angry and aggressive in public because of this paranoia, and the Police have been involved because of my impulsive behaviour. 

Now, I've been in a constant state of up and down with my mood for months now. Extreme anger and rage brought on by these beliefs I have. I've been assessed by the integrated MHT [Early intervention in Psychosis] by a CPN she seemed to think I wasn't Psychotic. I've been then assessed by my usual CPN and just yesterday by a Consultant Psychiatrist.

Who said I suffered from these beliefs as a result of mental illness, but that it was anxiety. Now, I disagree with this, I didn't say so because I struggle to be assertive in these meetings. 

I also disagree that my medication is helping...I've got a long history of taking anti-depressants SSRIs and Tricyclics, and now a SNRI drug. Anyhow, I had my hopes up I'd get the support I not only wanted, but need. How wrong was I.

They aren't going to review my meds cos I have only been on them two months. Yeah I mean the CPN said last time we won't review your meds you haven't been on them long enough speak to your GP. To be fair, the GP has done more than the CMHT has ever done. But the GP cannot do much more which is why the doctor referred me in the first place for a "specialist opinion" but no push back off the CMHT.

They just don't seem to want to prescribe anything else...my issue is I do believe I need to be on Anti-Psychotics, if not for the paranoia I am experiencing for the fluctuation in my mood I experience. This is not normal behaviour for me what I've been doing; acting out. 

Instead - no they want to keep me on Duloxetine - and look at the max dosage cos they think its working and the anger is my true emotions, well your damn right it is, when your around people and you think they are mocking you all the time and its causing rage in public and aggression. 

But for her to just say its anxiety. No its much more than that. 

Anyhow she suggested social support from the local council, which is commendable, and also some for of "stabilisation" therapy or graded exposure to get out the house. Again commedable. 

However, I don't agree with the medication I'm on, and I also don't think its just anxiety. I only got forty mins with her, and I'm not the best at communciation, my mind goes blank alot. 

The psychiatrist suggested all of this which I thought was the good part, and asked the CPN if she agrees to which she says -well maybe you can agree to it-and laughs. Which I thought was a bit odd to say, its almost like there is some push back to it all the time. CPN then says, Well we'll need to have a formulation meeting about this won't we?....

This is all I ever hear from my CPN ie It's not my decision..We need to have a formulation meeting first etc etc. Nothing gets done. 

Yesterday when the Con Psych asked my CPN what work she's been doing with me, she simply shrugged it off and said -well nothing really have we, cos its quite debilitating isn't it.So I do feel like my illness was blamed for lacklustre treatment or no treatment should I say.

I am not happy about the direction of my treatment, I should be on a mood stabiliser to stabilise my moods alongside an anti-depressant not just hopelessly trying more anti-depressants...also they should not dangle the carrot and state they are going to do stuff, to then say -Oh we need to have a FORMULATION meeting about that first..nothing ever gets done. And they just tell me to ring crisis team - well let me tell you I've tried to ring them four times day - no answer. 

I remember when I first came to the CMHT meeting with my CPN she never even read my GPs initial letter which stated she wanted them to look at and review my medication. 

I've taken Citalopram, Sertraline, Fluoxetine, Mirtazapine, Propranolol, Lofepramine, and now Duloxetine over the last decade. I think its about time I tried something else isn't it now?

Enough banging my head against the wall with this stupid system.

I've had enough. I'm angry, disappointed I always feel so flat and depressed, empty after an appointment with them. They offer nothing but soundbites. 

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Karen Collman, Patient & Carer Experience Team Manager, Tees, Esk and Wear Valleys NHS Foundation Trust 2 years ago
Karen Collman
Patient & Carer Experience Team Manager,
Tees, Esk and Wear Valleys NHS Foundation Trust
Submitted on 11/08/2022 at 11:23
Published on Care Opinion at 11:23


I am sorry to read about your ongoing frustration with our services. I would like to investigate further so please can you provide details of the team you have had contact with. Thank you

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by Lonelyguy (a service user)

Hi Karen,

Many thanks for getting back in touch with me.

My mental health is in decline here I don't leave my house, I am feeling suicidal again - the medication I am on I'm afraid doesn't seem to be doing its job. Otherwise, I wouldn't still be feeling like this.

I just got rejected from a job for which I don't take rejections or abandonment too well at all which has knocked my mood and my self esteem further and made me more miserable.

I don't care if its not personal it still hurts!! When you've lived my life with abuse and things you will understand it.

So I had to leave my house because I don't get on with my Mother and its complicated and I have a difficult home life - so I can ring crisis team because she's nosey and I'm absolutely fed up of living here and having to suffer while nobody supports me.

I attempted to ring the crisis line ten times between yesterday and now. I can never get through. Its always recommended to me as an avenue for support, but you can never contact them, and when I have done they've been useless. Its okay to suggest a service to me to support me in crisis if it gets me off their books isn't it.

I think I know exactly whats. going on here. The community mental health team does not want to help me, but thats okay because I am not going to go away. They just fob you off like the GP does as well.

In fact, actually credit to my Dr of Haxby Surgery in Scarborough, they are the only one who's ever listened to me in a decade and referred me to CMHT.

I will keep complaining until they listen to me because not been listened too by people is a trigger of mine, and I deserve to be listened too because I'm a human being with feelings too so you will listen to me.

The service I refer to in my text is the Ellis Centre Integrated Community Team, in Scarborough.

I was reluctant to reply here because I feel nothing will get done and I feel I am receiving no support or care. I just want so help that's all I ask but I'm afraid its been in short supply. Simply having a chat and giving me the leaflet for Scarborough Survivors is not really support is it.

I am isolated, have no friends, or a great support network, I am lonely, very depressed and angry all the time, paranoid of people as well and its getting worse not better.

The services which are supposed to be there to help never answer, and all you get is a leaflet in hand and a chat at the Ellis Centre which I just think is unacceptable.

I've had to fight this system to see the Psychiatrist which shouldn't be the case in a country as resourced as the UK.

In other countries a Psychiatrist is the first professional you see.

I understand the NHS is underfunded but that's not my problem as a patient, and I'm sick of people using this as an excuse in general for lack of patient care.

I'm not just stating here to complain, its also because I am at my wits end and I don't know what to do anymore...I would like my care to be looked at again.

Response from Tees, Esk and Wear Valleys NHS Foundation Trust 2 years ago
Tees, Esk and Wear Valleys NHS Foundation Trust
Submitted on 22/09/2022 at 14:12
Published on Care Opinion at 17:10


As a Service we are extremely sorry to hear about your upset and frustration with the NHS, but especially your experience of your local Community Mental Health Service. As a mental health service, Scarborough Integrated Community Team, always endeavours to provide a service which is respectful, compassionate and responsible for the community it supports. It is very important to Tees Esk and Wear Valleys NHS Foundation Trust, that if we do fall short of these standards that we listen and understand where we have gone wrong. As an organisation we are always striving to improve and we can only do this by listening to patients, carers and partners who we serve. The points you have made in your complaint will all be looked into further by our leadership team and any learning will then be shared as appropriate with the team and our partner organisations.

As a trust we are committed to ensuring we improve the experience for everyone who use our services. As a patient it appears from your comments that you do not feel you have been listened to or understood in terms of your care needs, and we can only apologise for this. As a patient you should be at the centre of your care and your wishes and feelings should have been considered as part of your support and I can only apologise that this has not been your experience.

If you would like us to look at your individual circumstances, it would be helpful if you are able to contact our PALS Service on tewv.pals@nhs.net or freephone on 0800 052 0219 who will be able to take forward your concerns on your behalf.

Please accept our sincere apologies for any upset and distress caused and please be reassured that we have listened to and heard the comments you have made.

Opinions
Next Response j
Previous Response k