Text size

Theme

Language

"Disappointed in services"

About: Royal Infirmary of Edinburgh at Little France / Transplants

(as the patient),

Lack of information re facilities, eg hand buzzer and lights.

Lack of towels for patient use at weekends.

Medication not given on times required. Left in pain on several occasions.

Disappointed I was addressed as a ratio eg you are 1 of 8 today on several times, I found this very unprofessional.

Student nurses very helpful, hard working and keen to learn.

Health care assistants carried out tasks to the best of abilities and beyond.

Social worker - excellent and very professional and helpful

Food - not appetising and varied in presentation. Very bland and tasteless. Thank goodness for M and S. 

Bedpans of other patients left lying around toilets.

No water in bathroom on several occasions in room 2.

Sanitary bins not emptied and foul smelling.

Bins often not changed, no clean bags.

3 day night and day nurses very knowledgeable re dressings, conditions and hardworking. 1 nurse did not answer toilet buzzer when i was left covered in vomit. No towels. I was left to clean floor alone.

Lack of attention to other patients on ward who were in distress. Caused me emotional distress.

I asked to self administrative medications and was supervised  by nurse. I used Mars sheet.

Spoke to clinical lead nurse about concerns and due to being very unwell I was then granted single room.

Single room aided ease and acess to toilet facilities and promoted my dignity and independence.

The Cleaners were friendly and helpful. Sanitary bins already full on arrival. Bin wrapped in poly bag to avoid infection. Very concerning. 

Often nursing staff appeared more focused on break times than patient care.

Met many Drs, Professors and surgeons and these team members changed frequently due to my medical condition not being identitied due it's complexity.

Was moved from Aberdeen Royal to Edinburgh Royal to hopefully get jejunostomy. Several assessments were carried out and felt that my transplanted liver had a very short bile duct stitched to small intestine which had developed post operative scarring that narrowed the bile duct which was unable to naturally realease large Crystals. Only small bile crystals were passed via a pig tail catheter. As the procedure, I ended up in an emergency situation at the weekend. 

Hygiene on ward 206 often concerned me as I had to ask for clean bedding after 4 days. Vomit was left beside me and visitors which was not pleasant. 

Often I was given conflicting information which caused confusion and distress. It would be helpful to have accurate information and diagnosis not a lots of if's and buts. 

My discharge was very rushed, I felt very unwelcome. My medication was not discussed to me until I checked the medication and found new medication which again caused me confusion as I was never told I was to start this tablet. I feel it dangerous to send home patients without full information especially their medications. 

I was then asked to return to a room to wait where I had just had bad news re future transplant and was upset. This is very inconsiderate of the ward staff despite knowing our transport was coming. It was concerning that patients can't get home at weekends and have to wait until Monday to get home. 

I am home on bed rest. My blood tests also showed sleep deprivation and distress. 

In my own home, I can use my own facilities and not rushed in the toilet. 

I have been traumatised by the admission. 

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Jeannette Morrison, Head of Patient Experience, NHS Lothian 2 years ago
Jeannette Morrison
Head of Patient Experience,
NHS Lothian
Submitted on 28/11/2022 at 13:51
Published on Care Opinion on 29/11/2022 at 12:08


Dear Sallydog1

Thank you for taking the time to share such detailed feedback with us via Care Opinion. I would like to sincerely apologise that you had such a poor and distressing experience.

The Clinical Management Team at the Royal Infirmary of Edinburgh are aware of your story and would like to fully investigate the issues raised and provide you with a detailed response. They were very sorry to read of your experiences and feedback.

If you do feel able, please can I ask you to contact the Patient Experience Team and their email address is feedback@nhslothian.scot.nhs.uk as we will need some further information from you which will include your name, date of birth and address. I would be grateful if you can please make reference to this Care Opinion story in your email.

I am pleased to read that you found a lot of staff to be so helpful, including student nurses, health care assistants, social worker, and cleaners and this will be shared with the staff.

Please can l apologise again for what has been such a difficult experience for you.

Thank you again for taking the time to share your feedback with us as we really do value all feedback and it is important that we learn from it.

Kind regards

Jeannette

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Opinions
Next Response j
Previous Response k