I had been having mysterious lumps and bumps on my hands and forearms plus repeated visits to a&e with my throat closing over,face and tongue swellings ....always in pain somewhere.Was discharged from ENT months before as thankfully nothing sinister going on there and same with dermatology.
I had emergency steroids in the house but even these failed to keep my throat open.Received intravenous antihistimines which worked and Dr Beckett came along and asked me a series of questions then said 'Let me think about this' ..he had bloods taken and voila!
I received a call from him the following week telling me I had vasculitis and referred me to Dr Blyth,rheumatology! Dr Bltyh was able to name my lumps I showed him from photos and has put me on a drug to try and combat everything that is going on.
I am extremely grateful to the care and concern I have been given by my own GP Dr Nelson(Camelon medical practice) who diagnosed my myasthenia gravis leading to discovery of a thymoma entering my heart! Thanks to Dr Neumann(FVR Hospital Larbert)for his referal to Mr Brackenberry (cardio/thoracic surgeon in Edinburgh) on that occasion and now once more the NHS has been wonderful in trying to get to the bottom of another rare auto immune condition!
So many, many thanks to Dr Beckett(FVRHospital)the Sherlock Holmes of acute medicine and to Dr Blyth for the drug that I hope will mean the end of all this weird and fascinating carry on in my body :D
"Correct diagnosis of mystery illness"
About: Forth Valley Royal Hospital / Acute assessment unit Forth Valley Royal Hospital Acute assessment unit FK5 4WR Forth Valley Royal Hospital / Cardiology Forth Valley Royal Hospital Cardiology FK5 4WR Forth Valley Royal Hospital / Rheumatology Forth Valley Royal Hospital Rheumatology FK5 4WR General practices in Forth Valley General practices in Forth Valley
Posted by Galadrial 58 (as ),
Responses
See more responses from Daniel Beckett
Update posted by Galadrial 58 (a service user) 6 years ago